Ear Tubes - Success!!

Everything went great today with Cate's ear tube surgery.  I think the hardest part was not letting her eat since the surgery wasn't until 11:15 am.  Dr. G ended up replacing both ear tubes because the right was was starting to work its way out.  Unfortunately it looks like the problem with this set was that her body was rejecting the new type of tube they used in June.  Hopefully that is not a new trend and this new set which is as different kind will stay in for at least a year (the life on this type should be 3 years - I'll live with one at this point).  And there was no sight of the adenoids growing back - YAY!  Cate was amazing.  She played so well during the long wait (2 hour prior arrival time but surgery went right on time), fussed a little but she took the pre-surgery pain meds in one gulp, and had no problem letting the nurses wheel her way.  Normally we put her gown on after they do the meds but this time they were waiting and just took her in clothes.  She was gone less than 25 minutes total, they said she was asking questions and not at all nervous the whole time she was awake before and after.  She came back to me awake & pretty darn happy.  Then she explained exactly what had happened, drank her juice was was release 20 minutes later.  We were having a girls lunch by 1:00 and she ate every bite in between her chattering.  Thanks for all the good wishes  they worked!

about 5 minutes back from recovery and already smiling!

explaining that her IV is a straw in her arm to help her

a demonstration of how the doctor did "poof poof"

already in a silly mood before she'd even eaten

ate every bite of her lunch and part of mine! 

Darn Ear Tubes

Our ENT billing department must love us.  We are probably in their budget as an income source.  According to our ENT, Dr G, Cate has very tiny, very crooked ear canals.  They have grown with her but they are still much smaller than a typical ear canal and because of that fluid builds up behind the ear drum very easily.  We first learned this when Cate was a year old.  She had never passed a hearing test to that point so the pediatrician referred us to an Ear Nose & Throat (ENT) specialist.  We found out that Cate's hearing was probably equivalent to her being under water because of the fluid build up.  So in March 2007 we went to Children's Hospital to have ear tubes placed - she also had an Adenoidectomy because her adenoids were so large it was feared they might cause apnea if not removed.  The surgery was very short and the recovery pretty quick even with the adenoid removal.  Wow what a change!  For a little while Cate startled at everything, but within days we heard her making new noises and being much more responsive.  This started our journey with our friend the ENT.  Since Cate's ear canals are so tiny & crooked, they had to place the smallest tube they had and put them at an angle.  Ear tubes have an expected life of eighteen months to two years.  The hope being that by the time the first set falls out the child has grown enough that the ears can handle the fluid without the tubes and they never have to be replaced.  With Lucy this has been true so far, she had tubes after many, many ear infections - they fell out a couple months ago and so far no more infections and no fluid.  Not the case with Cate, hers have fallen out almost exactly one year post surgery - every year.    Every time we discover a tube is coming out we watch her for a month or two until the fluid build up and it really affects her hearing.  So she has had 5 sets - both ears every time (3/2007, 4/2008, 5/2009, 5/2010, 6/2011 - see what I mean about being an annual occurrence?) up to today.  So we should still be good for another 6 months at least right?  Well this time we've had fun kink in the system - one of the tubes they placed in June is now blocked up.  We tried everything , different kinds of drops and even a wick to hold the drops on the blockage but it will not clear.  So tomorrow we are back to Children's Hospital for a new ear tube.  In the past it has been a quick and easy out patient surgery.  They used to give Cate a drug to make her loopy and so she didn't remember the experience, then they use gas to put her out.  Dr. G then takes out any old tube parts that are still in there, drains out all the fluid, and puts the new tube in for each ear.  We have to be at the hospital 2 hours pre-surgery, then once they are ready for us it took about a half hour for the drug to take effect, they'd roll her back then about 15 minutes or so Dr. G has come to give me a report and about 15 minutes after that she comes back barely awake, groggy & unhappy, an hour plus later we get to leave.  In June we tried something different, we didn't give her the pre-drug and instead sent her back awake.  The nurses said she did great and never even seemed scared.  It made everything even easier since the gas wears off so much faster without the liquid - in June when she came back she was already awake, only a little grumpy and 20 minutes later we were in the car.  Hopefully this time it will be as smooth of a process. We will find out how remembering the previous experience plays into the fear factor for her because when we get her all gowned up and ready to roll she will actually remember what come next.  Hopefully this will not be a bad thing, she will go willing and take the gas without distress.   This time they are also going to recheck her adenoids and if they have grown back remove them again.  Its possible they did grow back because she was so young when they were removed the first time, this was a risk we knew about and hope doesn't happen. So keep your fingers crossed for a smooth surgery, no adenoids, and a little girl that can hear much better on the left side after tomorrow.
This is a picture of Dr. Cate taking care of her baby doll in June, hoping for a similar scene this time -

Dance Class Dilemma

Cate confuses me - a lot.  She loves to dance, twirls around all the time (and has ever since she could walk), and pretends to be a ballerina.  So it was the natural thing to sign her up for dance class.  I found a dance studio with a special program for children with Down Syndrome.  I thought it would be great for her because she'd get the dancing she loves without the strict positioning and with that extra little bit of help.   Cate has been attending since September.  The class is great, there is a teenage helper for each of the kids in the class and they do dance but they also do things like pretending to be animals and other fun exercises that work on strength, balance and coordination.  Every Saturday morning she loves dressing in her adorable ballet outfit, she is happy heading to class, frequently hops and dances into the studio, and she loves to put on her ballet shoes when we get there.  Then we step into the dance room where she clings to my leg and does not want to let go.  This is a totally un-Cate-like behavior.  I've been dropping her at daycare since she was 6 month old and therapy sessions multiple times a week since she was 3 - she never pulls the guilt trip on mommy routine I've seen from so many kids.  But for some reason as soon as she sees the helpers, she changes her mind and doesn't want to dance.  I don't think its a being shy thing, this is a kid who yesterday asked a stranger at PetSmart to sit down with her and look at the cats - and the lady did.  She loves to dance, she loves the studio with all the mirrors because she literally pulls me into it, but for some reason she doesn't seem to like the class itself.  We figured out a couple weeks ago that she was telling them she had to go potty in the middle of class every week - going into the bathroom then coming out 5 minutes later.  Interesting part about that is that she can't take off & put on her leotard by herself so who knows what she was doing in there but it wasn't going potty!  I stopped that one by making her go potty before she goes in and making sure her buddy & the teacher know she just went.  Now we are dealing with a scene every time I try to leave her in the room to go out to the waiting room - this week it even included tears.  She also ended up in time out this week because she sat down and refused to get up in the middle of class.  They said after the time out she was fine and participated.
So my dilemma is I don't know how to help her.  I asked the teacher if next week I could sit down with Cate's helper and learn a little bit about her and take her picture so I can try to talk her up to Cate.   That is my only idea and I don't think it is really going to help.  We can't quit now, we've already paid for the costume and recital fee for May.  Funny thing is that if you ask her if she had fun in dance she almost alway says yes and when we get home she wants to show daddy what she did in class.
That girl is just a rascal!

first position

second position



plie

just doing her own thing!

From sun and back and to the zoo

You might have heard my title phrase in a previous post.  Cate is an amazingly loving child - she tells people she loves them frequently, unprompted, and from the heart.  Sometimes she tell me "Mommy, I love you to the sun and back and to the zoo".  Since the zoo is her favorite place this is the best compliment she can give.  So this weekend I took the girls for a quick trip to the zoo, gotta love the season pass!  It was a perfect day for the zoo, we only needed sweatshirts not coats, the sun was shining and most of the animals were active.  We spent lots of time watching the gorillas since we hit their habitat just right and they were being fed a snack.  The girls were both fascinated by the mommy & baby pairs and the huge silverback sitting right in the middle eating oranges & grapefruit and throwing away the peels.  They were maybe thirty feet from the glass and all looking right at us since the food was being thrown from the roof above us.  It is crazy to see show many gestures or movements those gorillas have in common with humans.  Especially the mom who was cradling the newborn exactly like I used to hold the girls as babies.
Oddly enough Cate's other favorite thing was watching the zookeepers clean the elephant habitat.  Both elephants were in the elephant house and two zookeepers had raked up all the old stuff and were spreading out groups of fresh tree branches full of leaves and some little piles of something that looked like nuts or small fruits.  Cate asked a ton of questions about what they were doing and why and when the elephants would get to "come home".   On the way home she said "when I grow up I want to be a zookeeper".  I asked her why and she said she wants to clean up and feel all the animals.  This is a common statement from her and you know what, I don't doubt it for a second that she might do just that.

Mid Year Report Card

We got Cate's second quarter report card last week. I think it is pretty good - she met about four standards, had only 10 that were where "not yet demonstrated", but 7 of those were new this quarter, and she had twice as many "progressing" than "emerging". Confused?? You should see the report card with its 42 district wide standards saying things like "uses informal strategies to share objects between 2 or 3 people/sets".  Seriously, this thing took me an hour to figure out.  The whole time I'm reading it I'm imaging how long it must take the teacher to assess each of her 20 students in all these standards every quarter. The days of my kindergarten report card with about 5 items including "plays well with other - "Satisfactory" or "Unsatisfactory" are long past I know.

Overall I'm really pleased with Cate's progress as we pass the mid-year point of kindergarten. Here are her accomplishments as I see it:

• She has demonstrated to the teacher she knows 13/50 sight words based on the testing method of 30 words/minute using one stack of card and flipping them. With me using smaller stacks of grouped words like “color words” or having her pick words from cards on the desk – the number is about 25.

• She knows all the letter sounds and can sound out word parts but has still can't put the sounds together to make the actual word.  It may not be on par with her class but I think it is a great start to reading.

• She knows her safety info – including address, city, state, county, country, continent, planet (her own addition to the standard) & phone #
• She knows how to write all the letters, lower case & upper case and more than half of them are legible if she want to write them! Force her to write and you won’t be able to read it.
• She is showing big gains in math concepts, like she knows all her shapes including three dimensional ones like “cube”, “cone”, “cylinder” and “sphere”.
• Her coloring is improving, she is staying mostly in the line & does color blocking.
• She has the expected bouts of stubbornness that result in a “yellow” or a trip to time out but overall her behavior seems OK for a kindergartner who is expected to do a 7 hour day + home work.  In the behavior section of the report card she got one rating of “Area of Concern” for "staying on task" but the other items like “asks questions”, “pays attention”, "follows school rules”, she got satisfactory scores.
• She attends all the “specials” like PE, Music, Art without a para-pro and got ratings of “meets expectations” and “satisfactory conduct” in all of them.

• She is in a typical kindergarten class and she is MAKING FRIENDS!!! Socially her teachers say she has blossomed and her class really watches out for her without being told. She said when they line up they always make sure she isn’t last in line and if she starts falling behind as they move down the hall they say “hey come on Cate” or gently urge her forward - how cute is that?

Here is a video of Cate saying the months of the year for me - I didn't realize she knew all of them and was loving how clear her speech sounds.  Sorry for my very loud voice when you have to turn it way up to hear her very soft voice.  The bobble at the end was Lucy grabbing my arm to see the phone.

Shake up the routine

Normally my husband is the unfortunate one to deal with getting the kids ready for school in the morning.  I say "unfortunate" because Cate does not like to get dressed normally and she definitely doesn't want to do it when the end result is going to school  Although I guess its hard to blame her, when in her mind there is a choice - getting told what to do all day at school or stay home to play and watch TV.  So the the morning routine post a two week Christmas break has not been a fun experience for poor daddy.  But today everything fell into place to shake up that bad routine that we'd all gotten into since vacation.  Lucy woke up at 5:30 because she had overflowed her pull-up, which resulted in her sitting in bed yelling "Mommyyy" until I dragged myself out of bed to help her.  Contrary to my normal habit of going back to bed, I got in the shower and dressed for work.  Cate woke up right at 6, wanting to crawl in bed with Ric but I forced her into the bathroom and got her ready for school.  She was too sleepy to really put up much of a fight but she was not a happy camper being forced to get dressed.  I felt bad so I decided to give her a "treat".  I asked her if she wanted to make her own lunch.  She just about ran down the stairs.  She did a great job and was all smiles when she went back upstairs to play while everyone else got ready.  I guess the lesson here is that everyone needs a change sometimes.  I doubt this will bring on long term change but at least for one morning we all left happy.

She is making a roast beef and cheese roll up to go with the green beans (her favorite lunch item is cold green beans - go figure), pretzels and pineapple.  The carrot is for the guinea pig at school - that was my other bribe, she loves the guinea pig.

Funny Things kids say

My kids make me laugh frequently.   A lot of those times its because they says something incredible grown up for their age but sometimes its just plain funny.

Quotes from yesterday:
Cate after school - ParaPro says "see you tomorrow Cate", Cate responses "I'm not coming back tomorrow pumpernickel"  - pumpernickel started out as a silly word we used to break her out of a stubborn streak, now I think its becoming well know at her school as her pet name for people.

Lucy in the car on the way to swimming - "Mommy is the water warm enough for me to swim today?" - she is asking because I only took Cate the week before because her teacher cancelled class for lower than normal pool temps.  How does she remember that one time occurrence a whole week earlier and the explanation I gave her one time??

Cate in the car - "Lucy I love", Lucy "AWWWW, mommy Cate loves me", Lucy "Mommy I'm going to share my pretzels with Cate because sharing is good", Cate chopping away on the new acquisition because she'd finished her pretzels.

Cate in the car - "Lucy I love you, give me that book" - didn't work this time

When I'm getting ready to help Cate with homework I set Lucy up with coloring supplies.  I've been trying to get them to put the caps back on markers so I ask Lucy - "And what do you need to remember about markers", her response - "Don't stick them up your nose" - good advice, of course it steams from what she did the day before as evidenced by the one nostril that still shows signs of being blue

Cate - "I love my family to the sun and back and to the zoo" - this is high praise from her because the zoo is her favorite place.  We have heard "love you to the sun and back and to the zoo" before but it tickles me every time.

random sweet picture from this summer